Welcome to my Spina Bifida Awareness pages. Spina Bifida first touched my life when my oldest daughter Rachel was born on June 19, 1989, with the type of Spina Bifida known as Myelomeningocele, the most serious type of the birth defect. As a result Rachel also has Hydrocephalus (more commonly known as water on the brain). She has had numerous surgeries and is a paraplegic, using a wheelchair for ambulation. It has been quite a journey for our entire family with many ups and downs and I thought I'd share some of our journey and some informative facts about Spina Bifida with you. Below are some links you might find of interest.

For some information/answers concerning Spina Bifida click here: Spina Bifida FAQ's

Please scroll down and click on the Links button below for links to other sites that provide additional information about Spina Bifida and Hydrocephalus (Note: links will open in a new window):

Spina Bifida Association

March of Dimes

Mayo Clinic Spina Bifida Page

Kid's Health Spina Bifida Page

Hydrocephalus Association

Hydrocephalus Foundation

The American Latex Allergy Association

Coming soon: Rachel's Story...

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